Program at a Glance

To view the full conference program visit, our Web App or download our Mobile App.
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THURSDAY

Time	Audience	Session	Speakers
8:00 AM–7:15 PM	All Ages	Registration
11:45 AM–7:45 PM	All Ages	Exhibit Hall
12:45–2:00 PM	All Ages	New Participant Orientation	Diana Gray, MA Amanda Garzón, MA
2:20–3:30 PM	All Ages	Conference Welcome	Diana Gray, MA Marion L. (Jack) Walker, MD Brett Weitz Michael A. Williams, MD
3:45–5:45 PM	Ages 12–18 ONLY	*Teen Icebreakers – NEW**
3:45–5:45 PM		Making Connections: Person to Person (Interpersonal Connection Sessions)
	Family and Friends	Grandparents, Extended and Immediate Family, and Friends
	Spouses and Partners	Spouses and Partners
	Fathers	Fathers of Children: Birth to 4 Years Old
	Fathers	Fathers of Children: 5 to 12 Years Old
	Fathers	Fathers of Teenagers: 13 to 18 Years Old
	Fathers	Fathers of Young Adults: 19 to 30 Years Old
	Fathers	Fathers of Adults: 30 Years and Older
	Mothers	Mothers of Children: Birth to 4 Years Old
	Mothers	Mothers of Children: 5 to 12 Years Old
	Mothers	Mothers of Teenagers: 13 to 18 Years Old
	Mothers	Mothers of Young Adults: 19 to 30 Years Old
	Mothers	Mothers of Adults: 30 Years and Older
	Siblings	Siblings: 12 to 15 Years Old
	Siblings	Siblings: 16 to 18 Years Old
	Siblings	Siblings: 19 Years and Older
	NPH	Adults with Normal Pressure Hydrocephalus (NPH)
	Adults	Adults Diagnosed in Young and Middle Age
	Adults	Adults Treated in Infancy and Childhood: 19 to 25 Years Old
	Adults	Adults Treated in Infancy and Childhood: 26 to 29 Years Old
	Adults	Adults Treated in Infancy and Childhood: 30 Years and Older
	Spina Bifida	Individuals living with Spina Bifida and Hydrocephalus – *NEW
5:45–7:45 PM	All Ages	Welcome Reception
6:15–7:15 PM	NPH Research	NPH Townhall: Does shunting for Normal Pressure Hydrocephalus really work? An international study on NPH treatment. – *NEW	Mark Luciano, MD, PhD, FACS Mark G. Hamilton, MDCM, FRCSC, FAANS Michael A. Williams, MD

FRIDAY

Time	Audience	Session	Speakers
6:30–7:00 AM	All Ages	Sunrise Practice \| Yoga – *NEW	Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
7:00 AM–6:10 PM	All Ages	Registration
7:00 AM–6:10 PM	All Ages	Exhibit Hall
7:15 AM	All Ages	Grab and Go Breakfast
8:00–9:15 AM		100 Breakout Series
	Parents	101: Ask the Expert – Families with Young Children Living with Hydrocephalus	Bruce A. Kaufman, MD Elizabeth Tyler-Kabara, MD, PhD
	Parents	102: Ask the Expert – For Parents of Pre-teens and Teens	Brandon Rocque, MD Bradley Weprin, MD, MHCM
	Adults Young Adults	103: Ask the Expert – Adults Who Were Treated in Childhood	Michael A. Williams, MD Mark Hamilton, MDCM, FRCSC
	Adults Young Adults	104: Ask the Expert – Diagnosis in Adulthood (Not NPH)	Mark Luciano, MD, PhD, FACS
	NPH	105: Ask the Expert – Adults and Their Families Affected by Normal Pressure Hydrocephalus (NPH)	Christopher J. Farrell, MD Michael Levy, RN, ACNP-BC, CNRN
	Parents	106: Ask the Expert – Parents of Children with Complex Hydrocephalus and/or Multiple Shunts	Gerald Grant, MD John Honeycutt, MD
	Adults Parents Spina Bifida Young Adults	107: Ask the Expert – Spina Bifida and Hydrocephalus – *NEW	Jeffrey P. Blount, MD, MPH, FAANS Paula Peterson, APRN, MS, PNP
9:30–10:45 AM	Siblings ONLY	201: The Impact on Siblings	Peter Finlayson Jennifer Marshall, MSPAS, MSJ, PA-C
9:45–10:45 AM		200 Breakout Series
	Adults Young Adults	202: Anxiety, Depression and Hydrocephalus in Young Adults and Adults	Cynthia Smith-Seidel, PhD, ABPP/CN
	Adults Cerebral Palsy Epilepsy Parents NPH Spina Bifida Spanish Young Adults	203: Accessing Federal Programs: SSI, SSDI, Medicaid and Medicare	Andre Sam, CRPC®, APMA®
	NPH	204: Memory Problems and Dementia: How Neurologists and Neuropsychologists Evaluate, Diagnose and Treat Patients with Cognitive Impairment	Anna Campbell Sullivan, PSYD, ABPP-CN
	Parents	205: Lessons Learned. Parents’ Perspectives on Raising Children with Hydrocephalus – *NEW	Moderator: Jason Preston Panelists: Heather Bruen Amanda Garzón, MA Deitra Matthews Larry R. Rivkin, JD, CFP®
	Adults NPH Parents Young Adults	206: Controlling CSF Production – *NEW	Bonnie Blazer-Yost, PhD
	Teens	207: Up Close and Personal with Research – *NEW	Carolyn Harris, PhD James P. (Pat) McAllister II, PhD
	Spina Bifida	208: Fetal Surgery – *NEW	John (Jay) Wellons, III, MD, MSPH
10:45–11:15 AM	All Ages	Coffee Break with Exhibitors
11:15–12:15 PM		300 Breakout Series
	Siblings ONLY	301: Ask the Expert – Siblings – *NEW	Jennifer Marshall, MSPAS, MSJ, PA-C Peter Finlayson
	Adults Spanish Young Adults	302: Can I Do That? Living an Active Life with Hydrocephalus	Mark Luciano, MD, PhD, FACS
	Adults NPH Parents Young Adults	303: Beyond the Horizon: Innovations in Hydrocephalus Treatment and Management – *NEW	Marion L. (Jack) Walker, MD David D. Limbrick Jr., MD, PhD
	NPH	304: Managing Cognitive and Emotional Changes with NPH	Cynthia Smith-Seidel, PhD, ABPP/CN
	Parents Teens	305: Taking Charge of Your Medical Care: Here's What You (and Your Parents) Need to Know	Amanda Garzón, MA Brandon Rocque, MD
	Epilepsy Parents	306: Hydrocephalus, Seizures, and Epilepsy and its Impact on Life	Howard L. Weiner, MD, FACS, FAAP, FAANS Rohini K. Coorg, MD
	Parents	307: Testing New Therapies for Posthemorrhagic Hydrocephalus of Prematurity – *NEW	Brandon A. Miller, MD, PhD
	Cerebral Palsy Parents Spina Bifida	308: Pediatric Spinal Cord Disorders – *NEW	Jeffrey P. Blount, MD, MPH, FAANS
12:15–2:00 PM	All Ages	Touching Lives: State of the Association Address and Inspirational Keynote	Diana Gray, MA John (Jay) Wellons, III, MD, MSPH
2:25–3:25 PM		400 Breakout Series
	Adults NPH Young Adults	401: Is There a Doctor in the House? Finding a Neurosurgeon to Manage Your Care – *NEW	Moderator: Michael A. Williams, MD Panelists: Mark Hamilton, MDCM, FRCSC Mark Luciano, MD Michael G. Muhonen, MD Jonathan White, MD, FAANS, FACS
	Adults Parents Spanish Young Adults	402: Chronic Headaches and Hydrocephalus: When it's not the Shunt	Mark J. Burish, MD, PhD
	NPH	403: NPH: Rehabilitation Medicine Strategies – *NEW	John Thottakara, MD
	Parents	404: Anxiety, Depression, and Post-Traumatic Stress in Families with Hydrocephalus	Brandon Rocque, MDT Tessa van der Willigen, MPhil, MAPP T. Andrew Zabel, PhD, ABPP
	Adults NPH Parents Young Adults	405: Understanding Brain Pressure and ICP Monitoring: What it Tells us About your Brain – *NEW	Dr. Simon Malpas
	Teens	406: #BrainMATTERS	Carolyn Harris, PhD Ramin Eskandari, MS, MD James P. (Pat) McAllister II, PhD
	Parents Spina Bifida Young Adults	407: Continence Programs Across the Lifespan – *NEW	Richard C. Adams, MD
3:25–3:50 PM	All Ages	Coffee Break with Exhibitors
3:50–5:20 PM	Ages 15 – 29	*Managing the OVERLOAD: Tools for Anxiety and Stress NEW**	Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
3:50–5:20 PM	All Ages	Scientific Keynote: Robert Pudenz Lectureship This session is sponsored by: Rudi Schulte Research Institute	Monica Chau, PhD J. Gordon McComb, MD
5:20–6:10 PM	All Ages	Young Investigator Poster Session

SATURDAY

Time	Audience	Session	Speakers
6:30–7:00 AM	All Ages	Sunrise Practice \| Yoga – *NEW	Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
7:15 AM–4:45 PM	All Ages	Registration
7:30 AM–4:05 PM	All Ages	Exhibit Hall
7:30 AM–8:30 AM	All Ages	Grab and Go Breakfast
8:30–9:15 AM	All Ages	Plenary Session – Hydrocephalus Association (HA) Research Update	Monica Chau, PhD
9:45–11:05 AM		500 Breakout Series
	Adults Cerebral Palsy Epilepsy Spina Bifida Young Adults	501: Career Exploration – *NEW	SarahAnn S. Whitbeck, MBA, MSIS, FACEHP Dana Sowby
	Adults Cerebral Palsy Epilepsy NPH Parents Spina Bifida Young Adults	502: Introduction to Mindfulness	Tessa van der Willigen, MPhil, MAPP
	NPH	503: NPH 101	Michael A. Williams, MD Mark Hamilton, MDCM, FRCSC
	Parents	504: Rehabilitation Medicine Strategies for the Pediatric Population – *NEW	Maureen Nelson, MD
	Adults NPH Parents Young Adults	505: Shunt Obstruction	Carolyn Harris, PhD
	Teens	506: Looking Back…Moving Forward: A Conversations for Teens with Young Adults	Moderator: Ramin Eskandari, MD Panelists: Lauren Eng Genesis Espaillat Ian McDonough Kaitlyn McWilliams Alexander Rodger Jordan Rogers
	Parents	507: Hydrocephalus and School: Setting Kids Up for Success in the Classroom	Amanda Garzón, MA T. Andrew Zabel, PhD, ABPP
11:05–11:35 AM		Coffee Break with Exhibitors
11:35–12:35 PM		600 Breakout Series
	Adults Cerebral Palsy Epilepsy NPH Parents Spina Bifida Teens Young Adults	601:Making the Decision to Drive	Jennifer Perez Del Rio, OTR
	Adults Young Adults	602: Approaches to Chronic Pain in Adults with Hydrocephalus – *NEW	Kevin Hackshaw, MD
	Adults NPH Young Adults	603: Making an Impact: Improving Clinical Care for Adults with Hydrocephalus – *NEW	Mark Hamilton, MDCM, FRCSC Mark Luciano, MD, PhD, FACS
	Parents Siblings	604: Panel: The Perspective of Siblings – A Q&A for Parents led by Siblings	Moderator: Peter Finlayson Panelists: Dominic Colucci Sofia Montes Garzón Claudia Matthews Stephanie Vogt, MS Patrick Wood
	Parents	605: Making an Impact: Improving Clinical Care for Children with Hydrocephalus – *NEW	William Whitehead, MD
	Teens ONLY	606: Anxiety, Depression and Hydrocephalus	Adrienne Anderson, PhD Sabrina Gretkierewicz, PhD
1:05–2:35 PM	All Ages	To Infinity and Beyond: Keynote Address and Luncheon – *NEW	Diana Gray, MA Michael A. Williams, MD Keynote: Michael R. Barratt, MD
1:05–2:35 PM	Adults Cerebral Palsy Epilepsy Parents Spina Bifida Young Adults	*Career Exploration – NEW**	Dana Sowby SarahAnn S. Whitbeck, MBA, MSIS, FACEHP
3:05–4:05 PM		700 Breakout Series
		701: Complications of a Shunt System – *NEW	Marion L. (Jack) Walker, MD
	Adults Epilepsy Cerebral Palsy Parents NPH Spina Bifida Teens Young Adults	702: How is Technology Supporting Individuals with Health Needs, Memory and Executive Function Challenges – *NEW	Jesse M. Skoch, MD Cynthia Smith-Seidel, PhD, ABPP/CN T. Andrew Zabel, PhD, ABPP
	Cerebral Palsy Epilepsy Parents Spina Bifida	703: Disability and Special Needs Planning Made Easy	Andre Sam, CRPC®, APMA®
		Adult Panel: Living and Thriving with Chronic Conditions – *NEW	Moderator: Stephanie Vogt, MS Panelists: Tina Grubelic Robin Orlowski Caitlin Shemas Amy Thomas
	Adults Cerebral Palsy Epilepsy Parents Spina Bifida Young Adults	705: To Boldly Measure ICP Where No One has Measured ICP Before – *NEW	Moderator: Dorit Donoviel, PhD Michael R. Barratt, MD Scott 'Kidd' Poteet Emmanuel Urquieta Ordonez, MD, MS, AFAsMA Michael A. Williams, MD
	Teens	706: MRI and Your Brain: Think your math homework is complicated? Wait until you meet your brain. – *NEW
4:40–5:40 PM	All Ages	Intergenerational Panel - A Guide to Thriving and Closing Ceremonies	Moderator: Michael A. Williams, MD Panelists: Gary Chaffee Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500 Genesis Espaillat Amy Hendrix
7:30–10:30 PM	All Ages	Dinner Dance and Talent Show

Program at a Glance

To view the full conference program visit, our Web App or download our Mobile App.
You will be asked to create an account.

Come Together. Connect.

Stay Connected. #HACONNECT

Program at a Glance

To view the full conference program visit, our Web App or download our Mobile App. You will be asked to create an account.

Come Together. Connect.

Stay Connected. #HACONNECT

To view the full conference program visit, our Web App or download our Mobile App.
You will be asked to create an account.