Program at a Glance

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THURSDAY

Time	Audience	Session	Speakers
8:00–7:15 PM	All Ages	Registration
12:00 PM–7:15 PM	All Ages	Exhibit Hall
12:45–2:00 PM	All Ages	New Participant Orientation	Diana Gray, MA Amanda Garzón, MA
2:20–3:30 PM	All Ages	Conference Welcome	Diana Gray, MA Marion L. (Jack) Walker, MD Brett Weitz Michael A. Williams, MD
3:45–5:45 PM	Ages 12–19 ONLY	*Teen Icebreakers – NEW**
3:45–5:45 PM		Making Connections: Person to Person (Interpersonal Connection Sessions)
	Family and Friends	Grandparents, Extended Family and Friends
	Spouses and Partners	Spouses and Partners
	Fathers	Fathers of Children: Birth to 4 Years Old
	Fathers	Fathers of Children: 5 to 12 Years Old
	Fathers	Fathers of Teenagers: 13 to 18 Years Old
	Fathers	Fathers of Young Adults: 19 to 30 Years Old
	Fathers	Fathers of Adults: 30 Years and Older
	Mothers	Mothers of Children: Birth to 4 Years Old
	Mothers	Mothers of Children: 5 to 12 Years Old
	Mothers	Mothers of Teenagers: 13 to 18 Years Old
	Mothers	Mothers of Young Adults: 19 to 30 Years Old
	Mothers	Mothers of Adults: 30 Years and Older
	Siblings	Siblings: 12 to 15 Years Old
	Siblings	Siblings: 16 to 18 Years Old
	Siblings	Siblings: 19 Years and Older
	NPH	Adults with Normal Pressure Hydrocephalus (NPH)
	Adults	Adults Diagnosed in Young and Middle Age
	Adults	Adults Treated in Infancy and Childhood: 19 to 25 Years Old
	Adults	Adults Treated in Infancy and Childhood: 26 to 29 Years Old
	Adults	Adults Treated in Infancy and Childhood: 30 Years and Older
	Spanish	Haciendo Conexiones – *NUEVO
	Spina Bifida	Individuals living with Spina Bifida and Hydrocephalus – *NEW
5:45–7:15 PM	All Ages	Welcome Reception
7:15–10:00 PM	Ages 12-19 ONLY	*Teen Meet Up – NEW**

FRIDAY

Time	Audience	Session	Speakers
6:30–7:00 AM	All Ages	Yoga	Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
7:00–5:30 PM	All Ages	Registration
7:00–6:10 PM	All Ages	Exhibit Hall
8:00–9:15 AM		100 Breakout Series
	Parents	Ask the Expert – Families with Young Children Living with Hydrocephalus	Bruce A. Kaufman, MD Elizabeth Tyler-Kabara, MD, PhD
	Parents	Ask the Expert – For Parents of Pre-teens and Teens	Brandon Rocque, MD Bradley Weprin, MD, MHCM
	Adults Young Adults	Ask the Expert – Adults Who Were Treated in Childhood, Including First Generation	Michael A. Williams, MD Mark Hamilton, MDCM, FRCSC
	Adults Young Adults	Ask the Expert – Diagnosis in Adulthood (Not NPH)	Mark Luciano, MD, PhD, FACS
	NPH	Ask the Expert – Adults and Their Families Affected by Normal Pressure Hydrocephalus (NPH)	Christopher J. Farrell, MD Michael Levy, RN, ACNP-BC, CNRN
	Parents	Ask the Expert – Parents of Children with Complex Hydrocephalus and/or Multiple Shunts	Gerald Grant, MD John Honeycutt, MD
	Spanish	Preguntale a un Experto – En español – *NUEVO Presentación en espanol	David F. Jimenez, MD, FACS, FAANS
	Spina Bifida	Ask the Expert – Spina Bifida and Hydrocephalus – *NEW	Jeffrey P. Blount, MD, MPH, FAANS Paula Peterson, APRN, MS, PNP
9:45–10:45 AM		200 Breakout Series
	Adults Young Adults	Anxiety, Depression and Hydrocephalus in Young Adults and Adults	Cynthia Smith-Seidel, PhD, ABPP/CN
	Adults Cerebral Palsy Epilepsy Parents NPH Spina Bifida Spanish Young Adults	Accessing Federal Programs: SSI, SSDI, Medicaid and Medicare (Simultaneous Translation) Acceso a Programas Federales: SSI, SSDI, Medicaid y Medicare – *NUEVO (Traducción Simultánea)	Andre Sam, CRPC®, APMA®
	NPH	Memory Problems and Dementia: How Neurologists and Neuropsychologists Evaluate, Diagnose and Treat Patients with Cognitive Impairment	Anna Campbell Sullivan, PSYD, ABPP-CN
	Parents	Lessons Learned. Parents’ Perspectives on Raising Children with Hydrocephalus – *NEW	Moderator: Jason Preston Panelists: Amanda Garzón, MA Larry R. Rivkin, JD, CFP® Deitra Matthews Stay Tuned for Other Panelists!
	Adults NPH Parents Young Adults	Controlling CSF Production – *NEW	Bonnie Blazer-Yost, PhD
	Teens	Up Close and Personal with Research – *NEW	Carolyn Harris, PhD Jenna Koschnitzky, PhD James P. (Pat) McAllister II, PhD
	Spina Bifida	Fetal Surgery – *NEW	John (Jay) Wellons, III, MD, MSPH
	Siblings	Ask the Expert – Siblings – *NEW	Stay Tuned!
11:15–12:15 PM		300 Breakout Series
	Adults Spanish Young Adults	Can I Do That? Living an Active Life with Hydrocephalus (Simultaneous Translation) ¿Puedo hacer eso? Vivir una vida activa con hidrocefalia – *NUEVO Traducción Simultánea	Mark Luciano, MD, PhD, FACS
	Adults NPH Parents Young Adults	Beyond the Horizon: Innovations in Hydrocephalus Treatment and Management – *NEW	Marion L. (Jack) Walker, MD David D. Limbrick Jr., MD, PhD
	NPH	Managing Cognitive and Emotional Changes with NPH	Cynthia Smith-Seidel, PhD, ABPP/CN
	Parents Teens	Taking Charge of Your Medical Care: Here's What You (and Your Parents) Need to Know	Amanda Garzón, MA Brandon Rocque, MD
	Epilepsy Parents	Hydrocephalus, Seizures, and Epilepsy and its Impact on Life	Howard L. Weiner, MD, FACS, FAAP, FAANS Rohini K. Coorg, MD
	Parents	Testing New Therapies for Posthemorrhagic Hydrocephalus of Prematurity – *NEW	Brandon A. Miller, MD, PhD
	Cerebral Palsy Parents Spina Bifida	Pediatric Spinal Cord Disorders – *NEW	Jeffrey P. Blount, MD, MPH, FAANS
12:15–2:00 PM	All Ages	Touching Lives: State of the Association Address and Inspirational Keynote	Diana Gray, MA John (Jay) Wellons, III, MD, MSPH
2:25–3:25 PM		400 Breakout Series
	Adults NPH Young Adults	Is There a Doctor in the House? Finding a Neurosurgeon to Manage Your Care – *NEW	Moderator: Michael A. Williams, MD Panelists: Mark Hamilton, MDCM, FRCSC Mark Luciano, MD Michael G. Muhonen, MD Jonathan White, MD, FAANS, FACS
	Adults Parents Spanish Young Adults	Chronic Headaches and Hydrocephalus: When it's not the Shunt (Simultaneous Translation) Dolores de Cabeza Crónicos e Hidrocefalia: Cuando no es la derivación – NUEVO Traducción Simultánea Simultaneous Translation*	Mark J. Burish, MD, PhD
	NPH	NPH: Rehabilitation Medicine Strategies – *NEW	John Thottakara, MD
	Parents	Anxiety, Depression, and Post-Traumatic Stress in Families with Hydrocephalus	Brandon Rocque, MDT Tessa van der Willigen, MPhil, MAPP T. Andrew Zabel, PhD, ABPP
	Adults NPH Parents Young Adults	Understanding Brain Pressure and ICP Monitoring: What it Tells us About your Brain – *NEW	Dr. Simon Malpas
	Teens	#BrainMATTERS	Carolyn Harris, PhD Ramin Eskandari, MS, MD James P. (Pat) McAllister II, PhD
	Parents Spina Bifida Young Adults	Continence Programs Across the Lifespan – *NEW	Richard C. Adams, MD
3:50–5:20 PM	Ages 15 – 29	Managing the OVERLOAD: Tools for Anxiety and Stress \| Ages 15-29 – *NEW	Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
3:50–5:20 PM	All Ages	Scientific Keynote: Robert Pudenz Lectureship This session is sponsored by: Rudi Schulte Research Institute	Jenna Koschnitzky, PhD J. Gordon McComb, MD
5:20–6:10 PM	All Ages	Young Investigator Poster Session
7:30–10:00 PM	Teens	Teen Meetup *NEW

SATURDAY

Time	Audience	Session	Speakers
6:30–7:00 AM	All Ages	Yoga	Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
7:00–5:30 PM	All Ages	Registration
7:00–5:30 PM	All Ages	Exhibit Hall
8:30–9:15 AM	All Ages	Plenary Session – Hydrocephalus Association (HA) Research Update	Jenna Koschnitzky, PhD
9:45–11:05 AM		500 Breakout Series
	Adults Young Adults	Being Employed with Hydrocephalus: What are my Rights & Protections	Vanessa Dodds, M.Ed
	Adults Cerebral Palsy Epilepsy NPH Parents Spina Bifida Young Adults	Introduction to Mindfulness	Tessa van der Willigen, MPhil, MAPP
	NPH	NPH 101	Michael A. Williams, MD Mark Hamilton, MDCM, FRCSC
	Parents	Hydrocephalus and School: Setting Kids Up for Success in the Classroom	Amanda Garzón, MA T. Andrew Zabel, PhD, ABPP
		Rehabilitation Medicine Strategies for the Pediatric Population – *NEW	Maureen Nelson, MD
	Adults NPH Parents Young Adults	Shunt Obstruction	Carolyn Harris, PhD
	Teens	Looking Back…Moving Forward: A Conversations for Teens with Young Adults	Moderator: Ramin Eskandari, MD Panelists: Lauren Eng Genesis Espaillat Ian McDonough Kaitlyn McWilliams Alexander Rodger Jordan Rogers
	Spanish	Hidrocefalia y la Escuela: Preparando a los niños para el éxito en el salón – *NEW Presentación en espanol	Veronica Bordes Edgar, PhD, ABPP
	Siblings	The Impact on Siblings: Double Session for Siblings Only
11:35–12:35 PM		600 Breakout Series
	Adults Cerebral Palsy Epilepsy NPH Parents Spina Bifida Teens Young Adults	Making the Decision to Drive	Jennifer Perez Del Rio, OTR
	Adults Young Adults	Approaches to Chronic Pain in Adults with Hydrocephalus – *NEW	Kevin Hackshaw, MD
	Adults NPH Young Adults	Making an Impact: Improving Clinical Care for Adults with Hydrocephalus – *NEW	Mark Hamilton, MDCM, FRCSC Mark Luciano, MD, PhD, FACS
	Parents Siblings	Panel: The Perspective of Siblings – A Q&A for Parents led by Siblings	Moderator: Peter Finlayson Panelists: Dominic Colucci Sofia Montes Garzón Stay Tuned for Other Panelists!
	Parents	Making an Impact: Improving Clinical Care for Children with Hydrocephalus – *NEW	William Whitehead, MD
	Teens	Anxiety, Depression and Hydrocephalus	Adrienne Anderson, PhD Sabrina Gretkierewicz, PhD
	Spanish	Sistemas de derivación actuales y posibles complicaciones – *NUEVO Presentación en espanol	Stay Tuned!
1:05–2:35 PM	All Ages	To Infinity and Beyond: Award Ceremony and Keynote Address – *NEW	Diana Gray, MA Michael A. Williams, MD Keynote: Michael R. Barratt, MD
1:05–2:35 PM	Adults Cerebral Palsy Epilepsy Parents Spina Bifida Young Adults	*Career Exploration – NEW**	Dana Sowby SarahAnn S. Whitbeck, MBA, MSIS, FACEHP
3:05–4:05 PM		700 Breakout Series
		Complications of a Shunt System – *NEW	Marion L. (Jack) Walker, MD
	Adults Epilepsy Cerebral Palsy Parents NPH Spina Bifida Teens Young Adults	How is Technology Supporting Individuals with Health Needs, Memory and Executive Function Challenges – *NEW	Jesse M. Skoch, MD Cynthia Smith-Seidel, PhD, ABPP/CN T. Andrew Zabel, PhD, ABPP
	Cerebral Palsy Epilepsy Parents Spina Bifida	Disability and Special Needs Planning Made Easy	Andre Sam, CRPC®, APMA®
		To Boldly Measure ICP Where No One has Measured ICP Before – *NEW	Michael R. Barratt, MD Scott 'Kidd' Poteet Emmanuel Urquieta Ordonez, MD, MS, AFAsMA Michael A. Williams, MD
	Adults Cerebral Palsy Epilepsy Parents Spina Bifida Young Adults	Adult Panel: Living and Thriving with Chronic Conditions – *NEW	Moderator: Michael A. Williams, MD Panelists: Tina Grubelic Robin Orlowski Caitlin Shemas Amy Thomas
4:40–5:40 PM	All Ages	Intergenerational Panel - A Guide to Thriving and Closing Ceremonies	Moderator: Michael A. Williams, MD Panelists: Gary Chaffee Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500 Genesis Espaillat Amy Hendrix
7:30–10:30 PM	All Ages	Dinner Dance and Talent Show

Come Together. Connect.

Early Bird Rate Extended!

Program at a Glance

To view the full conference program visit, our Web App or download our Mobile App. You will be asked to create an account.

Come Together. Connect.

Stay Connected. #HACONNECT

To view the full conference program visit, our Web App or download our Mobile App.
You will be asked to create an account.