HA CONNECT 2022
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Program at a Glance

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THURSDAY
TimeAudienceSessionSpeakers
8:00 AM–7:15 PMAll Ages Registration
11:45 AM–7:45 PMAll Ages Exhibit Hall
12:45–2:00 PMAll Ages New Participant OrientationDiana Gray, MA
Amanda Garzón, MA
2:20–3:30 PMAll Ages Conference WelcomeDiana Gray, MA
Marion L. (Jack) Walker, MD
Brett Weitz
Michael A. Williams, MD
3:45–5:45 PMAges 12–18 ONLYTeen Icebreakers – *NEW
3:45–5:45 PMMaking Connections: Person to Person (Interpersonal Connection Sessions)
Family and FriendsGrandparents, Extended and Immediate Family, and Friends
Spouses and PartnersSpouses and Partners
FathersFathers of Children: Birth to 4 Years Old
FathersFathers of Children: 5 to 12 Years Old
FathersFathers of Teenagers: 13 to 18 Years Old
FathersFathers of Young Adults: 19 to 30 Years Old
FathersFathers of Adults: 30 Years and Older
MothersMothers of Children: Birth to 4 Years Old
MothersMothers of Children: 5 to 12 Years Old
MothersMothers of Teenagers: 13 to 18 Years Old
MothersMothers of Young Adults: 19 to 30 Years Old
MothersMothers of Adults: 30 Years and Older
SiblingsSiblings: 12 to 15 Years Old
SiblingsSiblings: 16 to 18 Years Old
SiblingsSiblings: 19 Years and Older
NPHAdults with Normal Pressure Hydrocephalus (NPH)
AdultsAdults Diagnosed in Young and Middle Age
AdultsAdults Treated in Infancy and Childhood: 19 to 25 Years Old
AdultsAdults Treated in Infancy and Childhood: 26 to 29 Years Old
AdultsAdults Treated in Infancy and Childhood: 30 Years and Older
Spina BifidaIndividuals living with Spina Bifida and Hydrocephalus – *NEW
5:45–7:45 PMAll AgesWelcome Reception
6:15–7:15 PMNPH
Research
NPH Townhall: Does shunting for Normal Pressure Hydrocephalus really work?
An international study on NPH treatment.
– *NEW
Mark Luciano, MD, PhD, FACS
Mark G. Hamilton, MDCM, FRCSC, FAANS
Michael A. Williams, MD
FRIDAY
TimeAudienceSessionSpeakers
6:30–7:00 AMAll Ages Sunrise Practice | Yoga – *NEWLian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
7:00 AM–6:10 PMAll Ages Registration
7:00 AM–6:10 PMAll Ages Exhibit Hall
7:15 AMAll Ages Grab and Go Breakfast
8:00–9:15 AM100 Breakout Series
Parents101: Ask the Expert – Families with Young Children Living with HydrocephalusBruce A. Kaufman, MD
Elizabeth Tyler-Kabara, MD, PhD
Parents102: Ask the Expert – For Parents of Pre-teens and TeensBrandon Rocque, MD
Bradley Weprin, MD, MHCM
Adults
Young Adults
103: Ask the Expert – Adults Who Were Treated in ChildhoodMichael A. Williams, MD
Mark Hamilton, MDCM, FRCSC
Adults
Young Adults
104: Ask the Expert – Diagnosis in Adulthood (Not NPH)Mark Luciano, MD, PhD, FACS
NPH105: Ask the Expert – Adults and Their Families Affected by Normal Pressure Hydrocephalus (NPH)Christopher J. Farrell, MD
Michael Levy, RN, ACNP-BC, CNRN
Parents106: Ask the Expert – Parents of Children with Complex Hydrocephalus and/or Multiple ShuntsGerald Grant, MD
John Honeycutt, MD
Adults
Parents
Spina Bifida
Young Adults
107: Ask the Expert – Spina Bifida and Hydrocephalus – *NEWJeffrey P. Blount, MD, MPH, FAANS
Paula Peterson, APRN, MS, PNP
9:30–10:45 AMSiblings ONLY201: The Impact on SiblingsPeter Finlayson
Jennifer Marshall, MSPAS, MSJ, PA-C
9:45–10:45 AM200 Breakout Series
Adults
Young Adults
202: Anxiety, Depression and Hydrocephalus in Young Adults and AdultsCynthia Smith-Seidel, PhD, ABPP/CN
Adults
Cerebral Palsy
Epilepsy
Parents
NPH
Spina Bifida
Spanish
Young Adults
203: Accessing Federal Programs: SSI, SSDI, Medicaid and MedicareAndre Sam, CRPC®, APMA®
NPH204: Memory Problems and Dementia: How Neurologists and Neuropsychologists Evaluate, Diagnose and Treat Patients with Cognitive ImpairmentAnna Campbell Sullivan, PSYD, ABPP-CN
Parents205: Lessons Learned. Parents’ Perspectives on Raising Children with Hydrocephalus – *NEWModerator:
Jason Preston

Panelists:
Heather Bruen
Amanda Garzón, MA
Deitra Matthews
Larry R. Rivkin, JD, CFP®
Adults
NPH
Parents
Young Adults
206: Controlling CSF Production – *NEWBonnie Blazer-Yost, PhD
Teens207: Up Close and Personal with Research – *NEWCarolyn Harris, PhD
James P. (Pat) McAllister II, PhD
Spina Bifida208: Fetal Surgery – *NEWJohn (Jay) Wellons, III, MD, MSPH
10:45–11:15 AMAll AgesCoffee Break with Exhibitors
11:15–12:15 PM300 Breakout Series
Siblings ONLY301: Ask the Expert – Siblings – *NEWJennifer Marshall, MSPAS, MSJ, PA-C
Peter Finlayson
Adults
Spanish
Young Adults
302: Can I Do That? Living an Active Life with Hydrocephalus Mark Luciano, MD, PhD, FACS
Adults
NPH
Parents
Young Adults
303: Beyond the Horizon: Innovations in Hydrocephalus Treatment and Management – *NEWMarion L. (Jack) Walker, MD
David D. Limbrick Jr., MD, PhD
NPH304: Managing Cognitive and Emotional Changes with NPHCynthia Smith-Seidel, PhD, ABPP/CN
Parents
Teens
305: Taking Charge of Your Medical Care: Here's What You (and Your Parents) Need to KnowAmanda Garzón, MA
Brandon Rocque, MD
Epilepsy
Parents
306: Hydrocephalus, Seizures, and Epilepsy and its Impact on LifeHoward L. Weiner, MD, FACS, FAAP, FAANS
Rohini K. Coorg, MD
Parents307: Testing New Therapies for Posthemorrhagic Hydrocephalus of Prematurity – *NEWBrandon A. Miller, MD, PhD
Cerebral Palsy
Parents
Spina Bifida
308: Pediatric Spinal Cord Disorders – *NEWJeffrey P. Blount, MD, MPH, FAANS
12:15–2:00 PMAll AgesTouching Lives: State of the Association Address and Inspirational KeynoteDiana Gray, MA
John (Jay) Wellons, III, MD, MSPH
2:25–3:25 PM400 Breakout Series
Adults
NPH
Young Adults
401: Is There a Doctor in the House? Finding a Neurosurgeon to Manage Your Care – *NEWModerator: Michael A. Williams, MD
Panelists:
Mark Hamilton, MDCM, FRCSC
Mark Luciano, MD
Michael G. Muhonen, MD
Jonathan White, MD, FAANS, FACS
Adults
Parents
Spanish
Young Adults
402: Chronic Headaches and Hydrocephalus: When it's not the ShuntMark J. Burish, MD, PhD
NPH403: NPH: Rehabilitation Medicine Strategies – *NEWJohn Thottakara, MD
Parents404: Anxiety, Depression, and Post-Traumatic Stress in Families with HydrocephalusBrandon Rocque, MDT
Tessa van der Willigen, MPhil, MAPP
T. Andrew Zabel, PhD, ABPP
Adults
NPH
Parents
Young Adults
405: Understanding Brain Pressure and ICP Monitoring: What it Tells us About your Brain – *NEWDr. Simon Malpas
Teens406: #BrainMATTERSCarolyn Harris, PhD
Ramin Eskandari, MS, MD
James P. (Pat) McAllister II, PhD
Parents
Spina Bifida
Young Adults
407: Continence Programs Across the Lifespan – *NEWRichard C. Adams, MD
3:25–3:50 PMAll AgesCoffee Break with Exhibitors
3:50–5:20 PMAges 15 – 29Managing the OVERLOAD: Tools for Anxiety and Stress *NEW Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
3:50–5:20 PMAll AgesScientific Keynote: Robert Pudenz Lectureship

This session is sponsored by: Rudi Schulte Research Institute
Monica Chau, PhD
J. Gordon McComb, MD
5:20–6:10 PMAll AgesYoung Investigator Poster Session
SATURDAY
TimeAudienceSessionSpeakers
6:30–7:00 AMAll AgesSunrise Practice | Yoga – *NEWLian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
7:15 AM–4:45 PMAll Ages Registration
7:30 AM–4:05 PMAll Ages Exhibit Hall
7:30 AM–8:30 AMAll Ages Grab and Go Breakfast
8:30–9:15 AMAll Ages Plenary Session – Hydrocephalus Association (HA) Research UpdateMonica Chau, PhD
9:45–11:05 AM500 Breakout Series
Adults
Cerebral Palsy
Epilepsy
Spina Bifida
Young Adults
501: Career Exploration – *NEWSarahAnn S. Whitbeck, MBA, MSIS, FACEHP
Dana Sowby
Adults
Cerebral Palsy
Epilepsy
NPH
Parents
Spina Bifida
Young Adults
502: Introduction to MindfulnessTessa van der Willigen, MPhil, MAPP
NPH503: NPH 101Michael A. Williams, MD
Mark Hamilton, MDCM, FRCSC
Parents504: Rehabilitation Medicine Strategies for the Pediatric Population – *NEWMaureen Nelson, MD
Adults
NPH
Parents
Young Adults
505: Shunt ObstructionCarolyn Harris, PhD
Teens506: Looking Back…Moving Forward: A Conversations for Teens with Young AdultsModerator:
Ramin Eskandari, MD

Panelists:
Lauren Eng
Genesis Espaillat
Ian McDonough
Kaitlyn McWilliams
Alexander Rodger
Jordan Rogers
Parents507: Hydrocephalus and School: Setting Kids Up for Success in the ClassroomAmanda Garzón, MA
T. Andrew Zabel, PhD, ABPP
11:05–11:35 AMCoffee Break with Exhibitors
11:35–12:35 PM600 Breakout Series
Adults
Cerebral Palsy
Epilepsy
NPH
Parents
Spina Bifida
Teens
Young Adults
601:Making the Decision to DriveJennifer Perez Del Rio, OTR
Adults
Young Adults
602: Approaches to Chronic Pain in Adults with Hydrocephalus – *NEWKevin Hackshaw, MD
Adults
NPH
Young Adults
603: Making an Impact: Improving Clinical Care for Adults with Hydrocephalus – *NEWMark Hamilton, MDCM, FRCSC
Mark Luciano, MD, PhD, FACS
Parents
Siblings
604: Panel: The Perspective of Siblings – A Q&A for Parents led by SiblingsModerator: Peter Finlayson

Panelists:
Dominic Colucci
Sofia Montes Garzón
Claudia Matthews
Stephanie Vogt, MS
Patrick Wood
Parents605: Making an Impact: Improving Clinical Care for Children with Hydrocephalus – *NEW William Whitehead, MD
Teens ONLY606: Anxiety, Depression and HydrocephalusAdrienne Anderson, PhD
Sabrina Gretkierewicz, PhD
1:05–2:35 PMAll Ages To Infinity and Beyond: Keynote Address and Luncheon – *NEWDiana Gray, MA
Michael A. Williams, MD
Keynote:
Michael R. Barratt, MD
1:05–2:35 PMAdults
Cerebral Palsy
Epilepsy
Parents
Spina Bifida
Young Adults
Career Exploration – *NEWDana Sowby
SarahAnn S. Whitbeck, MBA, MSIS, FACEHP
3:05–4:05 PM700 Breakout Series
701: Complications of a Shunt System – *NEWMarion L. (Jack) Walker, MD
Adults
Epilepsy
Cerebral Palsy
Parents
NPH
Spina Bifida
Teens
Young Adults
702: How is Technology Supporting Individuals with Health Needs, Memory and Executive Function Challenges – *NEWJesse M. Skoch, MD
Cynthia Smith-Seidel, PhD, ABPP/CN
T. Andrew Zabel, PhD, ABPP
Cerebral Palsy
Epilepsy
Parents
Spina Bifida
703: Disability and Special Needs Planning Made Easy Andre Sam, CRPC®, APMA®
Adult Panel: Living and Thriving with Chronic Conditions – *NEWModerator:
Stephanie Vogt, MS

Panelists:
Tina Grubelic
Robin Orlowski
Caitlin Shemas
Amy Thomas
Adults
Cerebral Palsy
Epilepsy
Parents
Spina Bifida
Young Adults
705: To Boldly Measure ICP Where No One has Measured ICP Before – *NEWModerator: Dorit Donoviel, PhD
Michael R. Barratt, MD
Scott 'Kidd' Poteet
Emmanuel Urquieta Ordonez, MD, MS, AFAsMA
Michael A. Williams, MD
Teens706: MRI and Your Brain: Think your math homework is complicated? Wait until you meet your brain. – *NEW
4:40–5:40 PMAll AgesIntergenerational Panel - A Guide to Thriving and Closing CeremoniesModerator:
Michael A. Williams, MD

Panelists:
Gary Chaffee
Lian Mosher, BBA, MS Yoga Therapy, C-IAYT 1000, RYT 500
Genesis Espaillat
Amy Hendrix
7:30–10:30 PMAll AgesDinner Dance and Talent Show

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Hydrocephalus Association
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Toll Free: 888-598-3789
conference@hydroassoc.org
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